FLY2

Ailments, Aches & Pains. (Let's hear them here)

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I hope all goes well nonna, after all this time you deserve some respite.

 

Edit:

 

oo oo I forgot to  say ....     TAKE IT EASYYYYYY

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I'll second that Brew.

Hope all goes well Nonna.

 

As for the itch.  It's still with me all the time but slightly less intense. Got my x-Ray results.  All clear.  Got the bloods too. Slightly anaemic, as ever. Raised bilirubin, as ever.

On the other hand my eosinophil count, whilst raised, is lower than last time.

Eosinophils are a clear marker for allergic response.. but you all knew that anyway...  So lowered levels is good.. moving in the right direction.

 

 

 

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1 hour ago, nonnaB said:

Heard today that I have my pre recovery appointment booked for next Wednesday so it may not be too long before I have my op. I have to go to Turin the appointment is 8am. 

Good news Nonna. 

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Hopefully this will put an end to your suffering nonna. Great news.

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1 hour ago, DJ360 said:

As for the itch.  It's still with me all the time but slightly less intense

 

Having followed what is turning into a bit of saga I take my hat off to you for your patience. To say I'm not in the least impressed with your doctors is something of an understatement.

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Hope all goes well Nonna, wish you all the very best. Then I can bully you without feeling guilty.. B.

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15 hours ago, philmayfield said:

Moving in the right direction politically as well Col?

That may be the underlying cause of the problem!

 

Nice thought Phil but I doubt it.  You'r confusing things which make my skin itch, with things that make it crawl....  :)

 

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There can be a psychosomatic link between psoriasis and other skin conditions. Perhaps if you tried relaxing and chilling out more it might help. Just a suggestion I throw into the ring Col!

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Now there you're correct.  I'm very aware of the 'psychomatic' and 'stress' elements in all of this.  Avid online discussion of many things is part of my relaxation...  :)

 

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Thankyou everyone for the encouragement it does make things a little easier to know that someone else besides the family is thinking about me. I phoned my cousin in Australia this morning , he's been having a tough time.its a bit complicated but basically he has a sort of cancer around his heart.the medical explanation is a stiff heart. but after chemo its cleared and is normal. The last 4 days they have been collecting stem cells and they are quite pleased with the result. It was really a relief to speak to him as we hadn't heard how in was in the last few months. He sounded great, him and his wife have just come back from Japan and now he tells me they are hoping to see us in Sept. he's touring Europa again seeing the places he missed a couple of years ago.

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On 6/5/2019 at 7:23 PM, Brew said:

 

Having followed what is turning into a bit of saga I take my hat off to you for your patience. To say I'm not in the least impressed with your doctors is something of an understatement.

 

Thing is Brew, a quick google around 'chronic hives/urticaria', or 'chronic itch/pruritis', will often come up with the phrases  'extremely common' and  'notoriously difficult to treat'.  

 

I'm giving it a week of so to see if it resolves further. It's incessant and still 'global', but not as bad as it was. I'm also trying a few other things to ease it.

 

If it doesn't continue to improve, I'll go back and further investigate the 'mummification' treatment mentioned last time I saw the Doc.

 

I've had four consultations, a couple of prescriptions and numerous blood tests.  I don't think it's fair to criticise the Docs. They are going through a logical sequence of tests and treatments.

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It's not the treatment it's the time you tell us it takes to get an appointment...

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You can get 'urgent' appointments on the same day, but there's not much point with this really. I booked my first appointment re: this with my nominated Doc but that was two weeks away and as things got worse I called again on a Friday and got an appointment with someone else for the following Monday.  I've had four consultations since then and it is sadly a case of giving treatments and strategies a bit of time to work.  The only thing which has stopped the itch is oral steroids, but they aren't a long term option.

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What makes you say that?

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Have had Sciatica for the last seven weeks and the pain at the moment is severe but rang the Doctors today and lucky old me, I managed to get an appointment for  4.30 pm- - - - - a fortnight from today.

                     

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15 minutes ago, Geoffrey Dennis said:

I managed to get an appointment for  4.30 pm- - - - - a fortnight from today.

 

Ridiculous! That's just the sort of thing that has people thinking maybe going to private health care is no bad thing.

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On 6/6/2019 at 9:56 AM, DJ360 said:

 

Nice thought Phil but I doubt it.  You'r confusing things which make my skin itch, with things that make it crawl....  :)

 

Hi DJ.

I had an on going itch for 18months plus

Mainly around waist but also knees fore arms hands and armpits.

Went to the docs and he diagnosed crabs!

WTF??! No chance!

So he reluctantly put scabies on my notes. But had treatment for scabies.

After 8 months and numerous visits and different docs i had a blood test at qmc, and also a skin biopsy.

It turns out my midnight scratching and rashes are caused by a gluten intolerance, (celiac).

Changed my diet to gluten free which was an eye opener and slowly now seeing the benefits of my health improving. Without going into detail re the symptoms, I'd recommend at least googling the condition.

Problem is, although supermarkets and eateries now cater for gluten free, its become a fad diet whereby people just go gluten free to lose weight, but mine is a recognised medical condition.

Hope I've helped.

Martin.

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25 minutes ago, Geoffrey Dennis said:

Have had Sciatica for the last seven weeks and the pain at the moment is severe but rang the Doctors today and lucky old me, I managed to get an appointment for  4.30 pm- - - - - a fortnight from today.

                     

Have you tried physiotherapy Geoffrey?  I had the worst sciatica 3 years ago following abdominal surgery.  After struggling with terrible pain, a limp and a floppy foot for nearly 6 months my consultant arranged for me to have an MRI scan (which I paid for, rather than wait too long) Then I paid to see (possibly) the best spinal surgeon in the area who said I had a bulging disc but he didn’t want to operate and suggested a course of physiotherapy.  The exercises certainly helped but for another year I got cramp in that leg regularly.  Three years on and I have no pain.  

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No LizzieM, I intend to ring  at 8 am in the morning to see if I can get a telephone "consultation" with one of the doctors. If not I will nip into the nearest chemists to see if they can recommend any over the counter treatment. 

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There aren’t any Geoffrey, I was taking so many strong painkillers, even morphine, but nothing worked all they did was make me feel extremely weary.   Best to get on the waiting list for NHS physio asap or be prepared to pay about £35 a session privately.   You may get some relief in bed by using pillows to raise your leg.  You have my sympathy, best wishes. 

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