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It is true what you say about Levadopa your friend that had hallucinations did get it from the drug. Some times though it is not allways the drug it is the condition. A lot of people who have PD also get REM (Rapid eye movement)  basic description When you go to sleep and you dream you do just that and your brain sort of freeze's but with REM you act out your dreams. You can do  hand gestures which can lead to violent thrashing,punching,kicking you can injur yourself or partner. jump out of bed. run into walls, striking a bed partner.shouting swearing at top of there voice. It very hard to wake the person up, Often people who have REM end up getting PD.Its not only the Levasdopa drug but from another drug you can get impulsive and compulsive behavior.  There are other drugs with    side effects but to many too metion. 

 

If you want tp know more about side effects have a look at Parkinson's uk web sight.                                                                                                                                                                              

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The bride in this photo passed away in her sleep yesterday, aged 91.  She’d been in a local care home for around 10 years suffering from dementia.  She was my aunt and I’m the little bridesmaid, I was

Just returned from a fishing trip to the Highlands with 3 mates, one has PD and he is an inspiration to us. We talk about it openly - as we do other problems and it helps us all so much. Two of us wit

Parkinson's a better understanding. Most of us with PD manage it well wilth help from our PD nurse. When you have being dianosed with PD you are allocated a Nurse  who specialise in  PD. Dependin

By the time my friend's husband was seeing Jerry the mouse, he was on very high doses of levadopa drugs, Mary. Sadly, he also developed lewy body dementia which can sometimes occur in association with Parkinson's.

 

Eventually, my mother was on no medication at all but still saw things: flowers and people, usually. Thankfully, nothing nasty.  The brain is a strange organ. 

 

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  • 9 months later...

TO-DAY APRIL 11th 2022 

IS WORLD PARKINSON'S DAY !!!

FOR MEMBER'S WHO WOULD LIKE TO SEE MORE WHAT WE DO SO WE CAN TELL PEOPLE ABOUT THE CONDITITION THEN TUNE INTO NOTTS TV 17-30   and finish 18-30  

ON FV Channel 7 and VIRGIN  159   

Many thanks members if you do watch please send me a comment on what you thought.

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I hope that mention will be made of PSP or Progressive Supra Nuclear Palsy and MSA or Multiple System Atrophy. These are both Parkinson's umbrella conditions which do not respond to levadopa drugs. My mum had the latter and, although it is now fourteen years since she was diagnosed with a condition she didn't have, I hope there is more understanding and awareness among medics than there was then. It seemed that only the Parkinson's specialist nurse had ever heard of them.

 

 

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  • 3 months later...

mary1947 Hope you watched the women's pairs final of the bowls in the Commonwealth games. Probably the most exciting and skillful game I have seen in years if not ever. Australia beat England by 1 after 18 ends. England saved the game in the 17th end with their last bowl and Australia won it with a fantastic drive with their last bowl. Gripping stuff on the edges of our seats and not quite sure who we wanted to win.

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HI OZT  I would have liked to have seen the bowls, but to a fall last year and falling out with a concreat slab  (guess who won) this year have not been able to bowl due to balance. I have fallen out with the sport only because I'm upset about notbeing able to play. The Master has said this year will play indoor bowls, have played before but just don't like it as much, plus dispite what folks think  it is a lot harder game. I know that in AUS indoors is played more than the out doors. I think I'm right.

What upsets me is that I wish that I had started playing the game of bowls sooner than when we retired.

If you have played your best then it doe's not matter who win's Aus or UK. but my money is on the UK of cause.

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I watched the game but missed the last few minutes.  One of our girls, Sophie Tolchard, is the cousin of my son’s best friend from school.  Her brother Sam got a Silver medal the other day too.  The Tolchards are a very talented family.  Roger and Jeff played for Leicestershire cricket, Roger making the England team.  Sophie and Sam are the kids of their brother Ray, who passed away many years ago, think he had MND.  Their sister moved to New Zealand and her son, Roger Twose played cricket for NZ.  Eddie Tolchard, our son’s friend, is MD of a Sports Management Company, representing many international cricketers.  Eddie got us tickets in the players family enclosure at Trent Bridge in 2005 to watch England v Australia.  Great place to be for a brilliant game of cricket.  

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10 hours ago, mary1947 said:

I know that in AUS indoors is played more than the out doors. I think I'm right.

Indoor versus outdoor bowls participation is seasonal with the game moving indoors in winter in the cooler southern states. There are around 250,000 that play competition bowls and 500,000 that play recreationally, recently introduced "barefoot bowling" has proved popular. Overall participation is slowly declining and many city based clubs are feeling the pressure from developers given the amount of land they occupy. I have fond memories of sitting watching my grandad play at the local Miners Welfare with my bottle of Vimto and a bag of crisps. The sound of wood on wood along with bat on ball at the cricket are the enduring sounds of an English summer for me

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What memories you have Ozt  can you imagen playing  bowls barefoot in the UK, H/S would have a field day, I wonder how many bowlers would drop a bowl on there foot.  Things change sometimes not for the better, when i started playing bowls it was not with the wooden kind, most of the old woods were polished/varnished/fixed to a nice stand and as for prizes for comps. Like the UK  most  of  the bowling greens are gone now even over grown or have been built on. The first team that I played for there green is now a garden centre.    

Not long after I started playing my grandson who was 11/12 came to stay, we took him to the green to have a game of bowls,  wow! what a great game he said, next day he could not wait to get to the green, NOT GOING TO PLAY TODAY GRAN HE SAID !!!!  ALL I CAN SEE ARE OLD FOGGIES AND I'M NOT ONE CF THOSE. It was a shame as we need young players to carry on the sport,  You do see a lot of younger bowlers indoors though. Maybe showing bowling on TV might just encourage younger folk to play.

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7 minutes ago, mary1947 said:

You do see a lot of younger bowlers indoors though. Maybe showing bowling on TV might just encourage younger folk to play.

Bowls both indoor and outdoor gets a reasonable amount of coverage on the  ABC TV (our BBC) and many of the top players are quite young. Many of our schools take the kids bowling too.

Do they still play Crown Green bowls up North or has that died out.

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Hi Ozt we live on the border of Nottinghamshire and Derbyshire you find Nottinghamshire are mostley green bowling and just up the road in Derbyshire the play mostly crown.

When we go indoors in winter we play at Alfreton Lesiure half of the winter indoor bowlers are crown greeners.

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  • 5 weeks later...

Many thanks CT for the info will look on PD/UK web site see if any thing more has been found out.  

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  • 8 months later...

There is not a real test to find out if you have "Parkinson's"   

Parkinson's is a disease of the central core of the brain which reduces it's prodution of a chemicsl known as dopamine. these are needed to change the electronic messages around the brain neurones (thinking that you want something) into nerve messages (which make the thing  happen) so messages can't get through so are delayed, hence the effect is slowness combined with stiffness and aches or trembling and uncertainty, depending on how it affects you in particular. 

It is a progrressive disease  and worsens over time,  and it affects people differently. Not all people experience who have PD will experience all the symptoms, and symptoms may vary in their severity.

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Just returned from a fishing trip to the Highlands with 3 mates, one has PD and he is an inspiration to us. We talk about it openly - as we do other problems and it helps us all so much. Two of us with stents and other problems and one just narrowly escaped from testicular cancer. We can just about muster up one fit man between us :cool:

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Hi PeverilPeril  It does help to talk about it, sorry to here about some of the illness's but its nice to talk the thing is with you being 3 mates together and with no ladies there you can open your hearts.  How long isit since your friend found  out he had  PD if it was just recently or a long time.ago  If he would like to know any more then tell him to send  message. There is a lot of help out there its just finding it.  

So as that little bird on ITV said 

"Its Good To Talk."

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Mary - my pal was diagnosed with PD about 6 years ago. He is managing it quite well and is otherwise very fit. Odd body movements and lack of coordination douse not stop him helping me with heavy objects. Tying flies on to the line takes him ages but he gets there. Smashing bloke. Reffed footy at pro level and we still enjoy a game of pool, having similar ability, being well past past our former selves :rolleyes: .

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Hi PP

so nice to hear your friend isv keeping well.  one of the joys about Parki is that your fingers don't want to do what you tell them, Me well i can not put on earing or chains with iut help, one of the worst things though is that most of my shoes have laces in them and I can not ties bows. Just one of the things that Parki throws at you.

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